Canadian collaborators working in the field of pediatric immune thrombocytopenic purpura (ITP)ators working in the field of pediatric immune thrombocytopenic purpura (ITP)
The CPTHN had its beginnings in the 1980’s as a result of Canadian collaborators working in the field of pediatric immune thrombocytopenic purpura (ITP). A group of Canadian investigators, led by Dr Victor Blanchette, conducted two prospective multicentre randomized clinical trials of different management strategies in children with newly diagnosed acute ITP. These widely quoted studies reported that therapy (IVIG, oral prednisone, or IV anti-D) resulted in a more rapid rise in platelet counts than observation alone in children with ITP. Dr. Maureen Andrew, a member of the initial Canadian ITP study group, used this loose collaborative group to help her establish the Canadian Children’s Thrombophilia Study Group which focused on inherited and acquired clotting disorders in children and was well recognized for its work.
Following the untimely death of Dr. Andrew in 2001 there was continued hope to build a Canadian clinical research network dedicated to the acquisition and dissemination of knowledge in the field of pediatric thrombosis and hemostasis. In 2004 the Canadian Pediatric Thrombosis and Hemostasis Network (CPTHN) was formed from two former groups: the Canadian Children’s Platelet Study Group and the Canadian Children’s Thrombophilia Study Group. The CPTHN was formally incorporated in 2008.
Membership is open to any individual interested or involved. in the care of children & families with bleeding and clotting disorders.
CPTHN team consists of an executive team, two subcommittees (Hemostasis and Thrombosis) and a Governance team.
The CPTHN plans to fulfill its mandate of improving the lives of children and families dealing with acquired and inherited clotting and bleeding disorders by:
- Facilitating collaborative work on projects and research within the fields of thrombosis and hemostasis.
- Promoting the development and communication of best practices in clinical care.
- Mentoring of junior faculty and trainees.
- Increasing awareness of pediatric bleeding and clotting disorders among other health care professionals, government, and advocacy groups.
We hope to achieve this mandate by continuing to work in a collegial and cooperative manner with our members across Canada.